Correlates of Everyday Choice and Support-Related Choice for 8,892 Randomly Sampled Adults with Intellectual and Developmental Disabilities in 19 States

Type: Peer Reviewed Publications

https://doi.org/10.1352/1934-9556-50.06.486

Published: 2012

Tichá, R., Charlie Lakin, K., Larson, S.A., Stancliffe, R.J., Taub, S., Engler, J., Bershadsky, J., & Moseley, C.(2012). Correlates of everyday choice and support-related choice for 8,892 randomly sampled adults with intellectual and developmental disabilities in 19 states. Intellectual and Developmental Disabilities50(6), 486-504. DOI: 10.1352/1934-9556-50.06.486

This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from 19 state developmental disabilities program agencies that participated in the 2008–2009 National Core Indicators Project. Controlling for physical and sensory impairment, age, behavioral support, communication, and state, people in residential settings with 16 or more people had less everyday choice than those in other living arrangements. People with mild and moderate IDD had more control over everyday choices when living in their own homes, whereas people with severe and profound IDD had more control when living in agency homes of 3 or fewer residents. For people of all levels of IDD, institutional settings of 16 or more residents offered the lowest levels of everyday choice. Controlling for the same covariates, individuals with all levels of IDD living in their own homes had significantly more support-related choices than those in any other residential arrangement. Controlling for individual and residential setting characteristics, the state in which sample members lived was notably predictive of support-related choice. Overall, the tested variables accounted for 44% of the variability in everyday choice and 31% in support-related choice.

Areas of work: Quality measurement, Long-term supports and services, Self-determination and self-direction, Person-centered planning and practice, Direct support workforce